Intellectual and Developmental Disabilities Services Definition
Purpose
Intellectual and Developmental Disabilities Services support children, youth, and adults to achieve full integration and inclusion in the mainstream, make choices, exert control over their lives, and fully participate in, and contribute to, their communities.Definition
Interpretation
Throughout this document the term "individual" is defined to include children, youth, and adults with intellectual and developmental disabilities. In instances where the individual cannot make his or her own decisions, sign documents, or is otherwise limited in his or her ability to provide informed consent, the term "individual" may be understood to also include an advocate or legal guardian, as in "...the individual, his/her advocate, or legal guardian...""Team" is defined to include the individual’s family, friends and other natural supports, circle of support, support/service broker, service coordinator, or others chosen by the individual. It is essential that members of the person’s team are, to the extent possible, chosen by, and are the preference of the individual.
Note:Please see the PA-IDDS Reference List for the research that informed the development of these standards.
Note:For information about changes made in the 2020 Edition, please see the IDDS Crosswalk.
Intellectual and Developmental Disabilities Services (PA-IDDS) 1: Person-Centered Logic Model
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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PA-IDDS 1.01
- needs the program will address;
- available human, financial, agency, and community resources (i.e. inputs);
- program activities intended to bring about desired results;
- program outputs (i.e. the size and scope of services delivered);
- desired outcomes (i.e. the changes you expect to see in service recipients); and
- expected long-term impact on the agency, community, and/or system.
Examples: Information that may be used to inform the development of the program logic model includes, but is not limited to:
- needs assessments and periodic reassessments;
- risks assessments conducted for specific interventions; and
- the best available evidence of service effectiveness.
PA-IDDS 1.02
- change in clinical status;
- change in functional status;
- health, welfare, and safety;
- permanency of life situation;
- quality of life;
- achievement of individual service goals; and
- other outcomes as appropriate to the program or service population.
Interpretation: Outcomes data should be disaggregated to identify patterns of disparity or inequity that can be masked by aggregate data reporting. See PA-PQI 5.02 for more information on disaggregating data to track and monitor identified outcomes.
PA-IDDS 1.03
- corporal punishment;
- the use of aversive stimuli;
- interventions that involve withholding nutrition or hydration, or that inflict physical or psychological pain;
- the use of demeaning, shaming, or degrading language or activities;
- forced physical exercise to eliminate behaviors;
- unwarranted use of invasive procedures or activities as a disciplinary action;
- punitive work assignments;
- punishment by peers; and
- group punishment or discipline for individual behavior.
PA-IDDS 1.04
- the agency can document its reasons for believing that the intervention will be beneficial to the individual;
- the individual or his or her guardian has been fully informed about the risks and benefits of the intervention and has consented to it;
- the intervention is prescribed by a qualified medial practitioner or recommended by an interdisciplinary team;
- the agency periodically reviews the continued need for and effectiveness of the treatment or intervention; and
- the intervention is not used as a substitute for appropriate staffing patterns, for the convenience of staff, or as punishment.
PA-IDDS 1.05
- ensures personnel are trained on therapeutic interventions prior to coming in contact with the service population;
- monitors the use and effectiveness of therapeutic interventions;
- identifies potential risks associated with therapeutic interventions and takes appropriate steps to minimize risk, when necessary; and
- discontinues an intervention immediately if it produces adverse side effects or is deemed unacceptable according to prevailing professional standards.
Note: Therapeutic Interventions do not include restrictive behavior management techniques, which are addressed in Behavior Support and Management (PA-BSM). Please see the glossary definition for Therapeutic Interventions for additional guidance on this standard.
Intellectual and Developmental Disabilities Services (PA-IDDS) 2: Personnel
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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PA-IDDS 2.01
- interaction and communication techniques;
- implementation of person-centered service plans;
- implementing the principles of self-determination and inclusion;
- use of assistive technology;
- teaching ADLs; and
- recognizing and addressing abuse, neglect, and exploitation.
PA-IDDS 2.02
- management of behavior, including risk of harm to self or others;
- positive behavioral supports;
- assisted dining techniques and good nutrition;
- lifting and transfer techniques;
- safe transportation techniques;
- health related supports; and
- medication administration.
PA-IDDS 2.03
PA-IDDS 2.04
- assigning a worker at intake or early in the contact; and
- avoiding the arbitrary or indiscriminate reassignment of direct service personnel.
PA-IDDS 2.05
- the qualifications, competencies, and experience of the worker, including the level of supervision needed;
- the work and time required to accomplish assigned tasks and job responsibilities; and
- service volume, accounting for assessed level of needs of persons served.
Intellectual and Developmental Disabilities Services (PA-IDDS) 3: Intake and Assessment
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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PA-IDDS 3.01
- how their request matches the agency's services; and
- what services will be available and when.
PA-IDDS 3.02
PA-IDDS 3.03
- include assignment of a primary contact person within the agency;
- give priority to urgent needs and emergency situations;
- support timely initiation of services; and
- provide placement on a waiting list or referral to appropriate resources when individuals cannot be served or cannot be served promptly.
PA-IDDS 3.04
- completed within established timeframes;
- updated as needed based on the needs of persons served; and
- focused on information pertinent for meeting service requests and objectives.
Interpretation: The Assessment Matrix - Private, Public, Canadian, Network determines which level of assessment is required for COA’s Service Sections. The assessment elements of the Matrix can be tailored according to the needs of specific individuals or service design.
Intellectual and Developmental Disabilities Services (PA-IDDS) 4: Service Planning and Monitoring
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VIEW THE STANDARDS
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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No On-Site Evidence
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PA-IDDS 4.01
PA-IDDS 4.02
PA-IDDS 4.03
- agreed upon goals, desired outcomes, and timeframes for achieving them;
- services and supports to be provided, and by whom;
- a means for resolving conflicts, and possibilities for maintaining and strengthening family relationships and other informal social networks;
- procedures for expedited service planning when crisis or urgent need is identified; and
- the individual’s signature.
PA-IDDS 4.04
- assume a service coordination role, as appropriate, when the need has been identified and no other agency has assumed that responsibility;
- ensure that they receive appropriate advocacy support;
- assist with access to the full array of services to which they are eligible; and
- mediate barriers to services within the service delivery system.
PA-IDDS 4.05
- health and safety issues;
- degree of supervision needed;
- independent living, social, and daily living skills;
- nutritional and dietary needs;
- leisure and vocational interests, aptitudes, and need for greater social inclusion;
- screening and treatment for co-occurring psychiatric disorders or substance use conditions;
- the need for assistive technology, auxiliary aids, and other special accommodations;
- positive behavior support planning;
- medication needs;
- issues related to adaptive, behavior, and cognitive functioning, including concrete and abstract reasoning;
- specialized supports such as physical, speech, and occupational therapy;
- ancillary services;
- end of life planning; and
- the need for hospice or palliative care.
PA-IDDS 4.06
- service plan implementation;
- progress toward achieving service goals and desired outcomes; and
- the continuing appropriateness of the agreed upon service goals.
PA-IDDS 4.07
- review progress toward achievement of agreed upon service goals; and
- sign revisions to service goals and plans.
Intellectual and Developmental Disabilities Services (PA-IDDS) 5: Social Inclusion and Community Participation
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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PA-IDDS 5.01
- identifying and pursuing the types of social roles, as well as family and other relationships, the individual wishes to pursue;
- providing opportunities for social and physical interaction with persons, in addition to service providers and recipients; and
- achieving an optimal level of community involvement and participation.
PA-IDDS 5.02
- adult foster care or kinship care;
- education;
- employment, including supported employment;
- health and behavioral health services;
- housing services and supports;
- in-home support;
- recreation;
- volunteerism;
- religious and spiritual supports;
- mentoring services; and
- transportation.
- after-school programs;
- education support; and
- mentoring.
PA-IDDS 5.03
- sexual development;
- safe and healthy relationships;
- family planning;
- prevention of STDs and HIV/AIDS; and
- prevention of sexual abuse and exploitation, including giving and receiving sexual consent.
Intellectual and Developmental Disabilities Services (PA-IDDS) 6: Assistive Technology
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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No On-Site Evidence
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PA-IDDS 6.01
- involved in the selection of specific technologies;
- afforded the opportunity to try the device prior to purchase or assignment; and
- trained on the use of specific assistive devices being provided.
PA-IDDS 6.02
- purchase or gain access to assistive technology, auxiliary aids, and other assistive devices; and
- make necessary physical adaptations to the person's home.
Intellectual and Developmental Disabilities Services (PA-IDDS) 7: Support Services for Family and Caregivers
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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PA-IDDS 7.01
PA-IDDS 7.02
- behavioral support;
- case management;
- counseling;
- early intervention services;
- financial assistance;
- in-home support;
- public entitlements;
- respite services; and
- support groups.
Intellectual and Developmental Disabilities Services (PA-IDDS) 8: Case Closing and Aftercare
A rating of (1) indicates that the agency's practices fully meet the standard and reflect a high level of capacity.
- All elements or requirements outlined in the standard are evident in practice, with rare or no exceptions: exceptions do not impact service quality or agency performance.
A rating of (2) indicates that an agency's infrastructure and practices are basically sound but there is room for improvement.
- The majority of the standards requirements have been met and the basic framework required by the standard has been implemented.
- Minor inconsistencies and not yet fully developed practices are noted; however, these do not significantly impact service quality or agency performance.
Partial Implementation, Concerning Performance
A rating of (3) indicates that the agency's observed infrastructure and/or practices require significant improvement.
- The agency has not implemented the basic framework of the standard but instead has in place only part of this framework.
- Omissions or exceptions to the practices outlined in the standard occur regularly, or practices are implemented in a cursory or haphazard manner.
- Service quality or agency functioning may be compromised.
- Capacity is at a basic level.
A rating of (4) indicates that implementation of the standard is minimal or there is no evidence of implementation at all.
- The agency’s observed service delivery infrastructure and practices are weak or non-existent; or show signs of neglect, stagnation, or deterioration.
Self-Study Evidence | On-Site Evidence | On-Site Activities |
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PA-IDDS 8.01
- is a clearly defined process that includes assignment of staff responsibility;
- begins at intake; and
- involves the worker, persons served and others, as appropriate to the needs and wishes of the individual.
PA-IDDS 8.02
PA-IDDS 8.03
PA-IDDS 8.04
- develop an aftercare plan, sufficiently in advance of case closing, that identifies short- and long-term needs and goals and facilitates the initiation or continuation of needed supports and services; or
- conduct a formal case closing evaluation, including an assessment of unmet need, when the agency has an interagency agreement that does not include aftercare planning or follow-up.